On a website called “CaringBridge”, I’m writing occasional updates on the Good Wife’s Multiple Systems Atrophy for a growing list of family and friends from near and far.
What follows is this week’s CaringBridge update.
One of my favorite bike rides is super challenging. And hella scenic. The boys and I, starting near Widgi Creek Golf Course in Bend, Oregon, spend the morning climbing up to Mount Bachelor and then midday circumnavigating it. It’s 85 miles in total, but when it comes to the day’s nutrition/hydration/grit, I prep for 72ish because the last 13 or so are all downhill, sometimes even with a tailwind.
I wanted to live out life with Lynn just like the Bachelor ride. Spending the final segment, having real fun, aimless, with the wind in our (fading) hair, enjoying ourselves, without much effort. We saved money, I unplugged from work, and Century Drive stretched out before us.
In my warped/idealized vision of unreality.
Now, I’m so sad to report, our collective ride is ending not with a grin inducing downhill, but with a major climb. Into a headwind, with plummeting temps, even hail. Think Italy’s Stelvio Pass.
If I had known we’d have to confront a hugely challenging curveball at some point in our story, I would’ve chosen an earlier chapter. Fo sho. But wasn’t given the option.
There’s too much to do to feel sorry for myself. I can and do feel very sorry for Lynn though.
One of Alison’s friends from high school died recently at exactly half of Lynn’s age.
That tragic event made me appreciative of the length of our ride, but I’m still extremely sad about Lynn’s daily challenges.
In short, things are going from rough to rougher. She’s sleeping more, her voice continues to fade, and her body completely shuts down about once a day.
But her mind and loving spirit remain intact. And for that, we’re grateful.



