“Keep Your Hand On That Plough, Hold On”

Science has no answers for Multiple Systems Atrophy. Some day it will, but until then, I lean heavily on the humanities for sustenance.

Ian McEwan is on my Mount Rushmore of writers. Presently, I’m reading his most recent novel, What We Can Know. The main character is a former academic caring for her husband who is suffering from Alzheimers. I marvel at McEwan’s ability to evoke that world. A hyper creative, all-world imagination that deeply moves me.

Then, a week ago, I stumbled upon a Robert Plant/Saving Grace Tiny Desk concert. Plant’s voice, at 77, is more bluesy and folksy than rock and roll. Major props to him for continuing to create. And for moving me. Deeply.

Lynn’s hearing is about the only thing M.S.A. has spared. So I shared this song with her. All I know to say to her now is, “Keep your hand on that plough, hold on.”

Matthew, Mark, Luke, and John, all them prophets dead and gone
Keep your hand on that plough, hold on
Never been to Heaven, but I’ve been told the streets up there are lined with gold
Keep your hand on that plough, hold on

Hold on, hold on
Keep your hand on that plough and hold on

Mary wore three links of chain, every link was Jesus’ name
Keep your hand on that plough and hold on
The only chains that we should stand are the chains of hand in hand
Keep your hand on that plough and hold on

Hold on, hold on
Keep your hand on that plough, hold on
Hold on, hold on
Keep your hand on that plough and hold on

Hold on, hold on
Hold on, hold on
Hold on, hold on
Keep your hand on that plough, hold on

It’s Happened

A large part of the rationale for the move to the Adult Family Home three months ago was that I could recover, and therefore Lynn and I could heal and get in sync, and spend whatever time is left as positively and peacefully as possible.

I am not in a good place, but a much better one. Way, way less stress. FuFu, Alison, and Jeanette, among many others, have saved me.

As a result, for the last two months, Lynn and I have enjoyed my visits. We look at photo albums. We listen to music. I tell her about my day. We loop the hood.

Most of all, we touch. I hold her hands and massage her calves. She hugs me tightly as if she’s not going to let go. We press our foreheads against each other. I caress her head as she falls asleep. We kiss.

It’s how we communicate.

I’ve never partnered with someone who is dying, so I’m improvising. All the time. What to say?

Last week I kneeled on the floor next to her hospice bed as she cried before napping. I told her I loved her and that she was okay, which of course, was untrue. Then I told her how sorry I was for what she’s experiencing. And that she’s been fighting it every minute she’s been awake for a few years and that was why she was completely exhausted. And that I wanted her to Rest even if that meant being alone. I told her how much I am going to miss her. More tears.

Then I told her she wasn’t alone and wouldn’t be alone. That she is bearing the fruit of having built such a caring and loving family.

We have had a much more intense relationship than you would probably guess. Intensely good most of the time, intensely bad some of the time.

I told her I was skimming an old Apple Note I wrote from when we were in marriage counseling five or six years ago. And how my one regret is all the time we wasted being mad at each other. I asked her to forgive me for being so stubborn and selfish. More tears.

I suspect she wanted to say something similar, but I was okay with her not being able to because I wanted to take most of the responsibility for our epic, sporadic struggles.

Even though we wanted to at times, I told her we never quit, and that was something.

In hindsight, we probably wasted 10% of our time together being too mad at each other to thoughtfully interact. Even though we learned to repair things, 10% of 38 years is almost four years! What we would do to have four years back.

More than Lynn, I accepted that we were never going to coast conflict free like some couples seemingly do. That the heartache was part and parcel of the intense intimacy. Again, in hindsight though, I wish we had far fewer, less intense conflicts. Fewer days where we couldn’t even talk to one another.

My unsolicited advice. Don’t take whatever committed relationships you’re in for granted. Be as proactive as you can. Trust one another enough to talk about what lies below the surface so that resentments don’t build up. Learn to listen and get more comfortable probing your partners’ feelings. If possible, by yourself, or together, enlist the help of a professional to learn to have fewer, less intense conflicts.*

Most of all, don’t assume you have many years and decades left, because you may not.

*LOL, I’m gonna get slammed for that wee bit of hypocrisy. :)

Paragraph To Ponder

From The New York Times.

Confronted with allegations that they had cheated in a course and fudged their attendance, dozens of undergraduates at the University of Illinois Urbana-Champaign recently sent two professors a mea culpa via email. But, according to the professors, artificial intelligence had written the emails.