Tag Archives: mental health

It’s Happened

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A large part of the rationale for the move to the Adult Family Home three months ago was that I could recover, and therefore Lynn and I could heal and get in sync, and spend whatever time is left as positively and peacefully as possible.

I am not in a good place, but a much better one. Way, way less stress. FuFu, Alison, and Jeanette, among many others, have saved me.

As a result, for the last two months, Lynn and I have enjoyed my visits. We look at photo albums. We listen to music. I tell her about my day. We loop the hood.

Most of all, we touch. I hold her hands and massage her calves. She hugs me tightly as if she’s not going to let go. We press our foreheads against each other. I caress her head as she falls asleep. We kiss.

It’s how we communicate.

I’ve never partnered with someone who is dying, so I’m improvising. All the time. What to say?

Last week I kneeled on the floor next to her hospice bed as she cried before napping. I told her I loved her and that she was okay, which of course, was untrue. Then I told her how sorry I was for what she’s experiencing. And that she’s been fighting it every minute she’s been awake for a few years and that was why she was completely exhausted. And that I wanted her to Rest even if that meant being alone. I told her how much I am going to miss her. More tears.

Then I told her she wasn’t alone and wouldn’t be alone. That she is bearing the fruit of having built such a caring and loving family.

We have had a much more intense relationship than you would probably guess. Intensely good most of the time, intensely bad some of the time.

I told her I was skimming an old Apple Note I wrote from when we were in marriage counseling five or six years ago. And how my one regret is all the time we wasted being mad at each other. I asked her to forgive me for being so stubborn and selfish. More tears.

I suspect she wanted to say something similar, but I was okay with her not being able to because I wanted to take most of the responsibility for our epic, sporadic struggles.

Even though we wanted to at times, I told her we never quit, and that was something.

In hindsight, we probably wasted 10% of our time together being too mad at each other to thoughtfully interact. Even though we learned to repair things, 10% of 38 years is almost four years! What we would do to have four years back.

More than Lynn, I accepted that we were never going to coast conflict free like some couples seemingly do. That the heartache was part and parcel of the intense intimacy. Again, in hindsight though, I wish we had far fewer, less intense conflicts. Fewer days where we couldn’t even talk to one another.

My unsolicited advice. Don’t take whatever committed relationships you’re in for granted. Be as proactive as you can. Trust one another enough to talk about what lies below the surface so that resentments don’t build up. Learn to listen and get more comfortable probing your partners’ feelings. If possible, by yourself, or together, enlist the help of a professional to learn to have fewer, less intense conflicts.*

Most of all, don’t assume you have many years and decades left, because you may not.

*LOL, I’m gonna get slammed for that wee bit of hypocrisy. :)

Just How Loco Exactly?

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After my last musing, SW, a close friend, texted me, “Please be more specific. I’m curious just how crazy you are.” Which made me smile.

The return text, “Where to begin?”

But then, I pressed pause. And thought about self compassion. And how I need to muster more of it given this most challenging chapter of my life.

And so I started to think about both sides of the ledger, the “irrational” and “rational”. The irrational mostly consists of what most objective observers would conclude is poor time/money decision-making. Meaning, I regularly do things that I could pay others to do for far less money than my increasingly limited time is worth.

But sometimes I just like popping the AirPods in, cranking up the Biebs, and washing my car in the driveway. Or washing the windows. Or cleaning the house. Which brings a documentary to mind about Japanese elementary schooling. When asked why young Japanese students clean their school at the end of each day, one Headmaster said, “Cleaning creates a calm and gentle spirit.” Love that. Sometimes there are less obvious, less tangible benefits to laboring yourself.

Without detailing the “rational” side of the ledger, suffice to say, there would be many more entries. In retrospect, I think I’ve done an extremely good job picking my parents, picking my in-laws, earning, saving, and investing. The first two highlight the role LUCK has played in my life. I wasn’t anywhere near perfect with respect to the other three, but I have made disproportionately more thoughtful decisions than thoughtless ones.

In my early twenties, when I was gifted some money from my parents for the first time, I had this deep-seated impulse to make the most of it. As an educator, I knew I’d never make bank. As a result, I educated myself about investing, and as our assets grew, we assiduously avoided lifestyle creep.

So much so, that family and friends get infinite amusement from teasing me about being too frugal for my own good. Yeah, I admit, often I am, but we still have lived posh lives, even by Western, late 21st century standards. And what my “friends” always fail to mention is that I’ve done a very good job growing our assets and taking the long view.

Which means now, we can pay for 24 hour care for The Good Wife without losing sleep. Which is a real blessing and one of the clearest indicators that my rational side has more than compensated for my irrational quirks.

For SW, here’s a lil’, lil’, on the quirk front. Yesterday, I traded in the Elonmobile for a new rig. I concede, I have a car prob, specifically, churning through them. The new rig comes in eight colors. I ended up with only my fifth or sixth fave color because it was the best deal I could find in Western Washington. By about $3k. I consciously told myself, configure the rig in whatever way will increase the odds of keeping it longer than my sad (sick) average. So I got the top trim, points for that. But deduct the same points for settling for a bottom-half color.

Also, SW, I spent way too many hours watching reviews, thinking about alternatives, and alternatives to alternatives, and then ultimately, interacting with dealerships.

Now, my “friends” are ripping me for being an ICE ICE Baby again. Mr. Fossil Fuel. A retrograde. To my many critics, take a number. Two of my fave “new car” texts today were, “He is milquetoast and has completely given up.” And “Your car matches UCLA’s performance” which was just mean.

Shifting gears, pun intended, I aspire to be more like my mom and wife, meaning way more generous. I took a baby step two weeks ago when I gave Olga a $3,000 (the money saved on the dud color?) bonus for being such an amazing help with Lynn over the last year. Because she lives check-to-check, it was like I had given her $30,000. As tough a Russian-Ukrainian woman as you’ll ever meet, at least on the surface, she broke down in tears.

So, forgive me if I cut myself some slack. Savings to soften the devastating blow of MSA. Savings to help the hijas and lighten others’ burdens. Savings to enable Olga to breath a little easier for a few months.

Just not enough savings for a bitchin’ colored rig.

A Surprise Swing Dance For The Win

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A very good friend of mine has been “unlucky” in marriage. Three divorces. Although the first was so short, and he was so young, he doesn’t count it. A mulligan if you will. So, for all intents and purposes, twice divorced.

Of course, you and I both know luck has nothing to do with whether committed relationships endure.

After his last divorce, about five years ago, he looked in the failed relationship mirror, and really didn’t like what he saw, negative patterns of his own doing.

In no time at all, he fell hard for partner four. So hard, he turned to a therapist to avoid sabotaging it.

No dude in the history of dudes has ever told another dude everything they talk about with their therapist. But my friend has confided in me a bit about his therapeutic journey including his initial question of “Am I an asshole?” I could have saved him a lot of time and money by simply saying “No, you aren’t an asshole. Not even close.” But his initial question was his way of asking, “What’s wrong with me?” Which lead to, “What work do I need to do to avoid fucking up this relationship?”

Relationship Four really warms my heart. I asked him what explains his positivity and joy in this new relationship and without hesitating, he said, “We have fun together.” I herby submit that as a litmus test for any committed relationship.

I don’t know anyone over fifty who has pivoted as much as my friend. The key ingredients as I understand them—introspection, humility, vulnerability, and self-compassion. Inspiring stuff.

Fast forward to a text he sent this morning. And I quote, “And then to top the evening off, I showed M how I had spent the last five weeks secretly learning to swing dance to surprise her for her 50th birthday. Yes, that’s as much as I can manage after five weeks. I can’t dance! And I’m a slow learner.”

The low res video nearly brought me to tears. Just the two of them, swing dancing in front of a big ass swing band in a New York City club. It’s so beautiful. Because it represents so much damn growth. He’s prioritizing her happiness. And so the happiness comes back to him.

On my run this afternoon, I kept returning to the vid in my mind. And all the innumerable podcasts I’ve listened to and “think pieces” I’ve read that lament the problem of boys, and how to raise men, and how to teach masculinity.

My friend’s surprise swing dance is the most manly, most masculine thing imaginable. Because it’s the result of all the intrapersonal work he’s done.

I firmly believe the “boy-man-masculinity” discussion is completely pointless. Instead of asking, “What does it mean to be a man?”, we should ask, “What does it mean to be a decent human being?” Instead of obsessing about getting masculinity just right, we should shift our focus to the personal attributes we want all young people to embody, irrespective of their gender identities.

Especially how to be caring, kind, and selfless. I am incredibly proud of my friend for piecing together an equation that fosters those exact attributes.

Introspection + humility + vulnerability + self-compassion.

Trying To Keep It Real

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Newish ritual. When Abigail comes at 8p during the week, I take advantage of the evening light and walk towards the co-op and then down the Garfield Nature Trail, popping out on West Bay and up West Bay back to basecamp. A serene 2k. All while whittling down the podcast queue. Since starting this ritual my sleep score has risen a bit. Cowinkydink?

The last “evening walk” pod was an interview with a male family therapist who explained men don’t learn to be vulnerable. Dude, not an original insight, but one that trigged one in me. While listening to him it dawned on me that The Good Wife wasn’t being vulnerable with me about her worsening condition and finite time. At all. And that, as a result, I wasn’t feeling very connected to her. Just the guy who helps her in and out of bed and the wheelchair. The bloke who cooks, cleans, and keeps her calendar.

And so I told her that, and said, “What gives?” And she deflected, saying I wasn’t being vulnerable, which was humorous because I had just defied my gender and communicated a heartfelt feeling. And I told her that too. And she was silent for awhile. And then.

She talked about my first marathon back-in-the-day which went by our street at mile 21 and how I had dropped out and didn’t even make it to there. And how I felt so bad for failing A and J. That it was a perfect opportunity to model toughness and I blew it. And how my beating myself up stuck with her. And she said I always praised her for any toughness she showed. And that if she’s tough now maybe she’ll slow down the disease’s inevitable progression.

Ah shit. Any chance of rewinding the tape? Of a do-over?

I told her I didn’t think toughness would slow down the atrophy, but that it most certainly would make it more difficult for us to connect.

Then she went deeper. Talked about being afraid of dying. About questioning lifelong religious assumptions. About specific anxieties tied to what will happen to her body upon dying.

Which allowed me to return to the old familiar fold of closest confidant and best friend.

I thanked her for her honesty and encouraged her to think about dying as a natural process that happens to her beloved plants, animals, all aspects of nature. To think of it as falling asleep, but not having to wake up.

I said it would be unbearably sad alone, but that she’ll be surrounded by people who love her dearly. People who are much better off having known her.

Right now, I’m the oldest and wisest I’ve ever been, so I don’t expect any of those words to ameliorate her end-of-life anxieties and fears.

But maybe, hopefully, a little.

Why Not?

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Inner peace is elusive the more we try to control others. True contentedness results from relinquishing control over other people’s thoughts and behaviors.

That’s what I’m in the process of learning. Am I half way? Who the hell knows. All I know is I will never arrive at the Total Acceptance train station.

When Lynn was diagnosed with Multiple Systems Atrophy and the symptoms started taking over our lives, I had unusual clarity about what I wanted to provide her in whatever time was left. I said to her, “I want this final chapter of your life to be as calm and comfortable as possible.”

As it has turned out, what I wanted was totally irrelevant. Her thought process was completely different, saying through her actions, “I want to ignore this diabolical disease to the best of my ability and maintain as much normalcy for as long as possible.”

Which makes caring for her so much more difficult. She’s always been uber-considerate and kind to a fault. Now though, her preternatural consideration is getting squelched by widespread atrophy. The lack of dopamine in her brain is wreaking havoc on her body and mind. I have to remind myself she’s not making a difficult situation more difficult on purpose. It’s brain chemistry.

A few examples. Six months ago or so, after dinner, I was able to say to her, “I’m going upstairs to read in the bath. I’ll be back down in one hour. Sit tight until then.” One fall night while I was decompressing in hot water, the bathroom door slowly opened. “What the hell!” No one else was home. Lynn entered on all fours. She had wheeled herself to the base of the stairs, gotten out of her wheelchair, and crawled up the stairs and across the t.v. room into the bathroom. Because she “wanted to see what the upstairs looked like now”. It wasn’t pretty getting her back downstairs.

A couple of nights ago, she appeared in my peripheral vision as I was watching basketball in the office. “WHAT are you doing?!” “Crawling.” “Why?!” “Why not?”

“Why not” is her philosophy.

Yes, you’re right, her stubborn resistance to the disease’s progression is better than giving up on life, but man oh man, I wish I could get her to accept the ways her body is failing her. At least a little bit.

But I can’t. And the more I accept that she gets to decide how to live out her final chapter, the better for both of us.

Who are you trying to control? How? When will you throw in the towel? The sooner, the better.

 

Paragraph to Ponder

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From a longer piece titled “Things I Want to Tell My Mom on Mother’s Day” by Jeanette Byrnes.

“When I developed severe OCD in 8th grade, you found me a therapist immediately. You explained to me what was going on in my brain. You explained that my OCD was separate from me, and that having OCD wasn’t my choice. You helped me make sense of a debilitating mental illness at the tender age of 13. As OCD made my world smaller and smaller, you fought it with me, tooth and nail, every day. For a year you took me to therapy, you did my homework with me, you wrote me notes of encouragement, and you sat on the floor with me as I sobbed, tortured by my brain chemistry. These were some of the most painful days of my life, and you were my safety. You made a terrifying experience less terrifying. You gave me the tools I needed to recover. What a gift you gave me.”

Where would she be, I wonder, if her mom hadn’t sat on the floor with her?

I Drive A Tesla (E)

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Hi, my name is Ron, and I drive a Tesla.

I’ve labelled this “explicit” because DanDanTheTranspoMan is the last person in the room with some semblance of clean cut, Midwest values. And he doesn’t like it when I write like George Carlin talked.

I bought a red Model Y with a tow hitch for the two-wheelers two years ago. The frictionless purchase process makes you wonder why anyone ever subjects themself to the conventional dealer experience. Brilliant.

And it’s outstanding transpo. Utterly amazing. There are are innumerable things to criticize the CEO (in name) about, but those who criticize the cars are being disingenuous.

Two weeks in, I somehow avoided a crash in Bend, OR as a result of one of the computers which stopped the car much more quickly than I could’ve. I also dig how it silently and ever so smoothly and slowly creeps in and around parking lots and in inner city Oly. With the home charger, it’s always ready for a good time. And it’s a fast motherfucker.* Rest assured, I’ll never be pinched in entering the fwy.

Of course, there are a few downsides. The insurance costs. The automatic wipers have a mind of their own, so much so, I have to manually set them. Oof, and most especially, the depreciation.

Oh, and I almost forgot, there’s the enriching of one of the most loathsome of the 8.062 billion people alive today.

And the increasing grief that comes with being associated with him. Which just recently started with this winsome greeting from a fellow driver, “You fuckin’ douche bag.” I told friends, I didn’t recognize him, but he obviously knew me! And yesterday, a woman on the other side of the road flipped me the bird.

Normally, being a modern, sensitive guy and all, these “greetings” would leave a mark. But these are not normal times. Both times I was picking up prescriptions at the pharmacy for my ailing wife. Caring for her has changed me. What constitutes a problem keeps getting redefined. The bar, for what gets to me, keeps getting raised.

The other day, on a cycling reprieve, I got soaked in much more rain than I had anticipated. I thought to myself of the revered philosopher, Jay-Z, and his “99 Problems” treatise.

Ninety-nine problems, but a bitch ain’t one
If you’re havin’ girl problems, I feel bad for you, son
I got ninety-nine problems, but a bitch ain’t one – hit me!

I’ve got ninety-nine problems, but being soaked, cold, and filthy ain’t one I thought to myself.

Maybe that’s why I laughed to myself when the rando woman flipped me the bird yesterday at the Fifth Street circle.

Then I thought I should probably prepare for the next encounter and the next. My plan is to channel the restaurant or Airbnb owners when they get scathing reviews. Something along the lines of, “I am sorry my car purchase has angered you so much. But thank you very much for your feedback. Please know I will take your middle finger and/or invective into consideration as I work to be a better person.”

No doubt my mix of zen and humor will disappear if and when my car is vandalized. If I parked it downtown with any regularity, there’s no doubt that would happen sooner than later. I have a $1k deductible, so fuck you in advance.

So maybe I should trade it in for something more socially acceptable. Which of course, doesn’t solve the larger problem. Still, in prep for that possibility, please let me know which carmakers you approve of so I may avoid offending you in the future.

*Now that DDTTM isn’t over shoulder, I feel freed up.

Human Decency Wins Again

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Life downtown means interacting with the Walking Wounded. Regularly.

Two times in as many weeks I’ve happily been ignored while next up in the grocery store check out line.

Both times the cashiers showed exceptional care and kindness to the down-and-out people in front of me. With no concern for the rest of us in line.

The first time the cashier explained that he knew the customer and always took extra time to do right by him and his guide dog. Although he didn’t need to, he also thanked me for my patience. I wish I had the presence of mind to thank him for taking his time to see the troubled person and for honoring his humanity.

A lot of people who are caring and kind normally aren’t especially either one when it comes to the homeless. Which perplexes me. It’s almost as if they’re offended by their poverty, addictions, and mental health issues. How dare they be poor, addicted, schizophrenic.

No one likes encampments in public spaces or personal property crime. But if we have to be angry, maybe we should direct our anger at ourselves for not making any more headway than we have in solving the crisis.

Granted, it’s a vexing, multi-faceted challenge. I suspect progress depends on more of us following the lead of patient, kind-hearted grocery store cashiers.

Add Andrew Huberman To The List

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Of famous figures capitalizing on the public’s tendency towards gullibility.

I read this lengthy takedown of Huberman so you don’t have to. You’re welcome.

The two most telling paragraphs are easily skipped over because of their seeming ordinariness.

“On Thanksgiving in 2018, Sarah planned to introduce Andrew to her parents and close friends. She was cooking. Andrew texted repeatedly to say he would be late, then later. According to a friend, ‘he was just, ‘Oh yeah, I’ll be there. Oh, I’m going to be running hours late.’ And then of course, all of these things were planned around his arrival and he just kept going, ‘Oh, I’m going to be late.’ And then it’s the end of the night and he’s like, ‘Oh, I’m so sorry this and this happened.’

Huberman disappearing was something of a pattern. Friends, girlfriends, and colleagues describe him as hard to reach. The list of reasons for not showing up included a book, time-stamping the podcast, Costello (his dog), wildfires, and a ‘meetings tunnel.’ ‘He is flaky and doesn’t respond to things,’ says his friend Brian MacKenzie, a health influencer who has collaborated with him on breathing protocols. ‘And if you can’t handle that, Andrew definitely is not somebody you want to be close to.’

“Flaky” is far too generous a word. Where was Huberman when he didn’t show? The profile would suggest with one of the six women he was in relationship with at the same time.

It turns out, thanks to the powers of duplicity coupled with the public’s gullibility, you can become famous, rich, and influential as a podcaster, salesperson, and academic without showing up for colleagues or even close personal friends. Repeatedly.

But “showing up” is a prerequisite for being a decent human being.